Autism

When you first noticed your loved one behaving in an unexpected way, you may have decided to wait and see. You may have thought, “Children go through phases. They'll grow out of it.” But the behaviors persisted. Today you may find yourself wondering: is it autism?

You may be worried, confused, or hopeful that you'll find a diagnosis for your child's symptoms. Whatever you're feeling, something brought you to this page. The best thing you can do is find the answer to your question. If it is autism, appropriate support can make a huge difference in your child's life.

Understanding Autism

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Autism Spectrum Disorder (ASD) is a developmental disorder with symptoms that appear within the first three years of life. Most children with autism look like other kids but they act and interact in ways that feel different from the behaviors of other children. When interacting with others, they may respond in unexpected ways, or they may not interact at all.

Autism is a spectrum disorder, which means that it appears in a range of forms and levels of severity. Some individuals develop typical capabilities in terms of speech and language – and develop exceptional skills – but struggle with lifelong social and behavioral differences. Others may have challenges in communication, sensory sensitivities, and behavioral issues, such as excessive tantrums, repetitive behaviors, aggression, and self-harm. The good news is that appropriate treatments can improve outcomes for many, if not most, people diagnosed with ASD.

Autism spectrum disorder (ASD) is a developmental disability caused by differences in the brain. People with ASD often have problems with social communication and interaction, and restricted or repetitive behaviors or interests. People with ASD may also have different ways of learning, moving, or paying attention. It is important to note that some people without ASD might also have some of these symptoms. But for people with ASD, these characteristics can make life very challenging.

Social Communication and Interaction Skills

Social communication and interaction skills can be challenging for people with ASD.

Examples of social communication and social interaction characteristics related to ASD can include
  • Avoids or does not keep eye contact
  • Does not respond to name by 9 months of age
  • Does not show facial expressions like happy, sad, angry, and surprised by 9 months of age
  • Does not play simple interactive games by 12 months of age
  • Uses few or no gestures by 12 months of age (for example, does not wave goodbye)
  • Does not share interests with others by 15 months of age (for example, shows you an object that they like)
  • Does not point to show you something interesting by 18 months of age
  • Does not notice when others are hurt or upset by 24 months of age
  • Does not notice other children and join them in play by 36 months of age
  • Does not pretend to be something else, like a teacher or superhero, during play by 48 months of age
  • Does not sing, dance, or act for you by 60 months of age

Restricted or Repetitive Behaviors or Interests

People with ASD have behaviors or interests that can seem unusual. These behaviors or interests set ASD apart from conditions defined by problems with social communication and interaction only.

Examples of restricted or repetitive behaviors and interests related to ASD can include
  • Lines up toys or other objects and gets upset when order is changed
  • Repeats words or phrases over and over (called echolalia)
  • Plays with toys the same way every time
  • Is focused on parts of objects (for example, wheels)
  • Gets upset by minor changes
  • Has obsessive interests
  • Must follow certain routines
  • Flaps hands, rocks body, or spins self in circles
  • Has unusual reactions to the way things sound, smell, taste, look, or feel

Other Characteristics

Most people with ASD have other related characteristics. These might include

  • Delayed language skills
  • Delayed movement skills
  • Delayed cognitive or learning skills
  • Hyperactive, impulsive, and/or inattentive behavior
  • Seizure or epilepsy disorder
  • Unusual eating and sleeping habits
  • Gastrointestinal issues (for example, constipation)
  • Unusual mood or emotional reactions
  • Anxiety, stress, or excessive worry
  • Lack of fear or more fear than expected

Available scientific evidence suggests that there are probably many factors that make a child more likely to have autism, including environmental and genetic factors.

Available epidemiological data conclude that there is no evidence of a causal association between measles, mumps and rubella vaccine, and autism. Previous studies suggesting a causal link were found to be filled with methodological flaws.

There is also no evidence to suggest that any other childhood vaccine may increase the risk of autism. Evidence reviews of the potential association between the preservative thiomersal and aluminum adjuvants contained in inactivated vaccines and the risk of autism strongly concluded that vaccines do not increase the risk of autism.

Diagnosing autism spectrum disorder (ASD) can be difficult because there is no medical test, like a blood test, to diagnose the disorder. Doctors look at the child’s developmental history and behavior to make a diagnosis.

ASD can sometimes be detected at 18 months of age or younger. By age 2, a diagnosis by an experienced professional can be considered reliable. However, many children do not receive a final diagnosis until much older. Some people are not diagnosed until they are adolescents or adults. This delay means that people with ASD might not get the early help they need.

Diagnosing children with ASD as early as possible is important to make sure children receive the services and supports they need to reach their full potential. There are several steps in this process.

Developmental Monitoring

Developmental monitoring is an active, ongoing process of watching a child grow and encouraging conversations between parents and providers about a child’s skills and abilities. Developmental monitoring involves observing how your child grows and whether your child meets the typical developmental milestones, or skills that most children reach by a certain age, in playing, learning, speaking, behaving, and moving.

Developmental Screening

Screening questionnaires and checklists are based on research that compares your child to other children of the same age. Questions may ask about language, movement, and thinking skills, as a well as behaviors and emotions. Developmental screening can be done by a doctor or nurse, or other professionals in healthcare, community, or school settings. Your doctor may ask you to complete a questionnaire as part of the screening process. Screening at times other than the recommended ages should be done if you or your doctor have a concern. Additional screening should also be done if a child is at high risk for ASD (for example, having a sibling or other family member with ASD) or if behaviors sometimes associated with ASD are present. If your child’s healthcare provider does not periodically check your child with a developmental screening test, you can ask that it be done..

Developmental Diagnosis

A brief test using a screening tool does not provide a diagnosis, but it can indicate whether a child is on the right development track or if a specialist should take a closer look. If the screening tool identifies an area of concern, a formal developmental evaluation may be needed. This formal evaluation is a more in-depth look at a child’s development and is usually done by a trained specialist such as a developmental pediatrician, child psychologist, speech-language pathologist, occupational therapist, or other specialist. The specialist may observe the child give the child a structured test, ask the parents or caregivers questions, or ask them to fill out questionnaires. The results of this formal evaluation highlight your child’s strengths and challenges and can inform whether they meet criteria for a developmental diagnosis.

A diagnosis of ASD now includes several conditions that used to be diagnosed separately; autistic disorder, pervasive developmental disorder not otherwise specified (PDD-NOS), and Asperger syndrome. Your doctor or other healthcare provider can help you understand and navigate the diagnostic process.

The results of a formal developmental evaluation can also inform whether your child needs early intervention services. In some cases, the specialist might recommend genetic counseling and testing for your child.

Attention deficit hyperactivity disorder (ADHD)

Symptoms of ADHD include:
  • Finding it hard to concentrate and getting distracted easily
  • Acting without thinking
  • Finding it hard to sit still

People with ADHD may need extra support at school or work. Sometimes they need to take medicine.

Dyslexia and dyspraxia

Some autistic people have:
  • Problems with reading, writing and spelling (dyslexia)
  • Clumsy movements and problems with organization and following instructions (developmental co-ordination disorder, or dyspraxia)

Extra support at school can often help.

Problems sleeping (insomnia)

Symptoms of insomnia include:
  • Finding it hard to go to sleep
  • Waking up several times during the night
  • Waking up early and not being able to go back to sleep

Changing your bedtime routine can often help.

Mental health problems

Many autistic people have problems like:
  • Feeling very worried a lot of the time (anxiety)
  • Feeling unhappy, irritable or hopeless (depression)
  • Feeling a need to keep doing certain actions (obsessive compulsive disorder, or OCD)

These conditions can often be treated with talking therapies or medicines.

Learning disabilities

A person with a learning disability may find it hard to:
  • Understand new or complicated information
  • Learn new skills
  • Look after themselves

People with a learning disability often need help with daily life.

Epilepsy

Symptoms of epilepsy include:
  • Shaking and collapsing (called a "fit" or seizure)
  • Staring blankly into space
  • Strange smells or tastes
  • Tingling in your arms or legs

Epilepsy can often be treated with medicine.

Problems with joints and other parts of the body

Some autistic people may have:
  • Flexible or painful joints
  • Skin that stretches or bruises easily
  • Diarrhoea or constipation that does not go away

These can be caused by conditions like joint hypermobility syndrome or Ehlers-Danlos syndromes.

You may need support from a range of health professionals, including a physiotherapist.

About sensory sensitivities and autism

Our environments are full of sensory information, including noise, crowds, light, clothing, temperature and so on. We process this information using our senses – sight, hearing, touch, smell and taste.

Autistic children are sometimes oversensitive or undersensitive to sensory information. This means their senses take in either too much or too little information from the environment around them.

Not all autistic children have sensory sensitivities, but some might have several.

Oversensitive to sensory information

When autistic children are oversensitive to sensory information, it’s called hypersensitivity. These children try to avoid sensory experiences – for example, they might cover their ears when they hear loud noises, eat only foods with a certain texture or taste, wear only certain types of loose-fitting clothing, or resist having haircuts or brushing teeth.

Undersensitive to sensory information

When autistic children are undersensitive to sensory information, it’s called hyposensitivity. These children seek out sensory experiences – for example, they might wear tight-fitting clothing, look for things to touch, hear or taste, or rub their arms and legs against things. Most of the time to experience sensory stimulation, undersensitive children resort to self-harm inflicting activities such as— violently biting and scratching their own body, bang their heads against the wall and hit themselves in other ways.

Oversensitive and undersensitive to sensory information

Some children can have both oversensitivities and undersensitivities in different senses, or even the same sense. For example, they might be oversensitive to some sound frequencies and undersensitive to others.

Typically developing children have sensory sensitivities too, but they often outgrow them. Sensory sensitivities tend to last longer in autistic children, although children often learn to manage sensitivities as they get older.

Sensory sensitivities can sometimes seem worse when children are stressed or anxious. Sensitivities can also make children feel stressed and anxious.

Sensory problems can affect a child’s whole family. For example, if a child is oversensitive to noise, it can limit where the child’s family goes or the kinds of activities the family does.

Signs of sensory sensitivities in autistic children and teenagers

The outward signs of sensory sensitivities vary depending on whether children are oversensitive or undersensitive. Here are some examples of different sensory sensitivities:

  • Sight: undersensitive children might like bright colours. Oversensitive children might squint or seem uncomfortable in sunlight or glare.
  • Touch: under sensitive children might seek out different textures or rub their arms and legs against things. Oversensitive children might not like the sensation of labels on the inside of clothes or try to take their clothes off.
  • Taste: undersensitive children might enjoy eating strongly flavoured food like onions and olives. Oversensitive children might eat only certain textured food.
  • Smell: undersensitive children might sniff everything. Oversensitive children might complain about smells like deodorants or perfumes or smell things that no-one else does.
  • Sound: undersensitive children might turn up music or speak loudly. Oversensitive children might cover their ears to block out loud noises.
  • Sense of position, balance and movement: undersensitive children might have unstable balance. Oversensitive children might have excellent balance.
  • Temperature: undersensitive children might want to wear warm clothes in summer heat. Oversensitive children might not feel the cold and want to wear shorts in winter.
  • Pain: undersensitive children might ignore injuries or have delayed responses to injuries. Oversensitive children might overreact to little hurts.

Helping autistic children and teenagers with sensory sensitivities

What you do to help your autistic child with sensory sensitivities depends on how your child reacts to sensory information.

If your child is easily overwhelmed by sensory information, you could try the following:

  • Have a ‘quiet space’ your child can go to when they feel overwhelmed.
  • Give your child extra time to take in what you’re saying.
  • Introduce your child to new places at quiet times, gradually increasing the amount of time they spend there in later visits.
  • Let your child try ear plugs or noise-cancelling headphones to help with sound sensitivities.

It’s also a good idea to speak with people ahead of time about your child’s needs if you’re going somewhere – people might be able to adjust a few things to make it easier. For example, if you’re making a playdate for your child, you could ask for it to be in a place that’s familiar to your child. You could look out for cinemas that have ‘sensory friendly’ movie screenings.

If your child needs more stimulation from the environment, you could try these suggestions:

  • Arrange for extra playtime outside.
  • Give your child toys that are extra-stimulating, like playdough or a squishy ball.
  • Have a certain time of the day to listen to music or bounce on the trampoline.
  • Speak loudly in an exaggerated way if your child tends to ignore sounds.

Awareness of pain

Some autistic children who are undersensitive might seem to be less aware of pain. For example, children might not notice when objects are too hot, or they don’t react to experiences that typically developing children find painful, like breaking an arm in a bad fall.

We don’t know much about how autistic children process pain sensations. It might be that they express pain differently from other children.

Helping children who seem less aware of pain

If your child seems unaware of pain or has a reduced sense of pain, there are several things you can do to help:

  • Teach your child which objects are hot and cold: You could try labelling objects in your house as ‘hot’ or ‘cold’, using either words or symbols, like fire and ice.
  • Keep dangerous objects out of reach: Cover hot objects like the stove immediately after use.
  • Talk with your child’s health professionals: Health professionals rely on cues like facial expressions or actions to know whether your child is experiencing pain, so it’s important for them to know if your child expresses pain in an unusual way.

Getting help for sensory sensitivities

Occupational therapists can assess your child's sensory sensitivities and develop a plan for managing them. They can also help you come up with appropriate strategies if your child self-stimulates or ‘stims’.

Dietitians and speech pathologists might be able to help if your child has taste and smell sensitivities that also cause eating issues.

If you think some sensory issues are happening because your child isn’t seeing properly, you could get your child’s vision checked by an optometrist. This will help rule out any visual problems.

If your child ignores sounds and people speaking, you could get your child’s hearing checked by an audiologist. This will help you rule out any hearing problems.

If your child’s behavior hurts themselves or other people, it’s best to get professional advice. An experienced professional can help you understand and manage your child’s behavior. A good first step is talking with your pediatrician or psychologist.

Autism and Education

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Bashundhara Special Children Foundation is located in Bashundhara Riverview Project at Hasnabad, Keraniganj— not far from Dhaka city. The school operates with three 7-storied buildings to train and educate specially abled children. Currently, 278 children specially abled children including children with autism are getting the best care from 50 experienced teachers. Soon, the student capacity will be increased up to 400 and the number of teachers and trainers will be increased up to 112.

Specially abled children from underprivileged families receive priority regarding admission here at the Bashundhara Special Children Foundation. Each child is individually screened to identify their specific needs and is then placed in sections that are specially designed to cater to those needs.

Contact for more details about Autism
Hotline: 16339
Email: info@bgc-bd.com

অটিজম সম্পর্কে বিস্তারিত জানতে যোগাযোগ করুন
হটলাইন: 16339
ইমেইল: info@bgc-bd.com

  • ECSEP (Early Childhood Special Education Program): This section is mostly for children below 5 years of age. Children showing special symptoms are screened here to better identify their conditions. The earlier their conditions are identified; the better care can be provided to improve the quality of their lives.
  • ASD (Autism Spectrum Disorder) section: This section is for children with Autism conditions. They mostly stay in isolation and are sometimes are afraid of people. Sometimes they show violent behavior as self-defense. But proper care and training can make their conditions manageable and give them a normal life.
  • ID (Intellectual Disable) section: This section specializes in training to do Activities for Daily Life or ADLs like toilet training, buttoning up one’s own dress and eating by oneself through storytelling, showing flash cards, behavioral management etc.
  • Primary section: Children from class 1 to 5 are taught in this section following NCTB text books and curriculum like regular children. Currently, there are 40 children in this section.
  • Vocational section: Boys and girls are separately trained in the vocational training section. The students learn to make handicrafts like bags, showpieces, decorative paintings etc. These items can be purchased and the money earned from the sales go directly to the student who made it.
  • HI (Hearing Impairment) section: Children with hearing impairment often show some traits of intellectual disability. They are trained through NCTB Curriculum and vocational trainings to enable them to lead a normal life. Also, those who cannot hear at all are taught sign language in this section.
  • VI (Visual Impairment) section: In this section, students are taught following the NCTB curriculum using Braille system. They can also sit for SSC and HSC Board exams using a writer. Also, Bashundhara Group is planning to create employment opportunities for these children.
  • CP (Cerebral Palsy) section: Children who have difficulty in walking, keeping balance, poor hip or neck control due to Cerebral Palsy conditions receive proper physiotherapy, physical training and other necessary therapies in this section.

Children with autism individually have different types of conditions, for which the school follows IEP (Individual Education Plan). Additionally, each of the sections teach and train children for activities in their daily lives like practicing language or speech training, behavior and emotion control, house management etc. All the children attend an assembly every morning where they have to do certain activities together. This session is like a summarized version of all the activities they do all day. Together they take part in physical training, speech therapy, dancing, singing and also learning pronunciation. Research shows that, children who take part in this assembly regularly develop faster than other children.

To ensure the best care for children with autism, psychologists and physiotherapists are always present here at the Bashundhara Special Children Foundation. Also, Bashundhara Group bears all expenses for the children’s education, training and treatment. There is a special contract between the group and AdDin Medical College Hospital to provide them with top-notch medical services, free of cost. Bashundhara Group also provides financial help to the children for receiving treatment and medical care from other hospitals.

Although there are no residential facilities for the students at present, Bashundhara Special Children Foundation plans to provide them with a place to stay in the near future. Six students from class 5 weekly attend regular schools now. By this, they are getting along with other children and getting accustomed to society and normal lifestyle. Among these students, two have qualified to sit for scholarship exams.

A student from the school has already been employed as a welfare staff at the Bashundhara Special Children Foundation. Some are getting training for shopkeeping and grocery shops will be set up for them in the future so that they can start earning. Also, a student is planning to go back to his village to educate and train specially abled people like him there.

The headmistress of the school, Shaila Sharmin emphasizes on the importance of proper screening and early intervention. She says: “if the symptoms are identified and the children are taken to a good ASD care facility, chances of developing their quality of life gets higher. They get to study and live life like any other person. It is important to ensure special education from a special institution run by a multidisciplinary team for children with autism. By this, they will receive the best care from physiotherapists, psychologists, educational specialists, special teachers, medical care providers and other professionals who will lead them towards a healthy, happy and normal life.”

Autism Support

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Receiving a diagnosis of autism can be devastating to some parents, but for others it can be a relief to have a label for their child’s symptoms. Some parents can be overwhelmed by fear and grief for the loss of the future they had hoped for their child, and joining parent support groups and talking to other parents may help. However, these strong emotions also motivate parents to find effective help for their children and to seek evidence-based treatments in the critical early intervention phase. The diagnosis is important because it can open the doors to many services, and help parents learn about treatments that have benefited similar children.

The most important point we want to make is that individuals with autism have the potential to grow and improve. Contrary to what you may hear from out-of-touch professionals or read in old books, autism is treatable. It is important to find effective services, treatments, and education for autistic children as soon as possible. The earlier these children receive appropriate treatment, the better their prognosis (though it’s never too late to improve overall quality of life). Their progress through life may be slower than others, but they can still live happy and productive lives with appropriate support.

Autism and stories

I am Sanjina Akter, mother of a special child. My child was diagnosed to have special conditions at the age of three and a half years. He would not eat anything. He would just drink milk from the bottle and would not eat food that required chewing. When we went out, he would not sit still even for a minute and would start throwing tantrums. Everyone around stared at us and call my child crazy at that time. It was very difficult for me. I then admitted my child to a special school according to the doctor's advice. After a year and a half of studying there, we saw no development. Every single day my child had to be given sleeping pills for his restlessness. Soon, the sleeping pills stopped working as well. As a result, lack of sleep became another major issue which increased his restlessness. Then I got to know about Bashundhara Special Children Foundation. My baby was admitted to Bashundhara Special Children Foundation 6 months ago. Alhamdulillah, my baby now eats all kinds of food. Whenever I go somewhere with my baby now, he sits quietly like any other normal child. His restlessness has also decreased a lot. Now he eats and sleeps on time. In fact, now he doesn't need any medication anymore. Finally, I thank Yasha Sobhan Nabila Ma’am for understanding the plight of mothers of special children like me and for building such an organization. Also, thanks to the teachers of Bashundhara Special Foundation, who have given so much effort to help my child fit in the society.

I am Rima Ahmed, mother of Raiyan Tahmid. Raiyan is a child with autism spectrum conditions. A lot of dreams and emotions of the parents revolve around their children. Same goes for us. Raiyan, our beautiful and healthy first child was born in 2012. Everything was going normally. But when he was 2, it seemed to me that Raiyan was not growing up or talking as much as the other kids of his age. I also observed some other issues. Then I took him to BSMMU to see a doctor. After running a few tests, they assumed that Raiyan had autism. At that time, I had no idea about ASD or autism. Then our battle started with Raiyan. I battled with myself, battled with my acquaintances and dear ones whose irritation stated to my face that they didn't like the presence of my Raiyan.

Since our child cannot express himself properly, his stubborn acts are often deemed as antisocial behavior. Not being able to talk about his problems, he shouts, and many people cannot accept that.

People around us and our relatives are very annoyed with his behavior. Sometimes I become totally clueless. How do I explain to them that my child is not doing this on purpose? He is behaving like this because he is suffering from within for not being able to communicate and express himself properly. Allah sent him to this world like this. It’s not his fault.

I have taken him to different places hoping that he will get better, but nothing worked out. However, I have also come to understand that autism is a lifelong condition that we must go through. He has to be taught many things, through various means and processes. It requires therapy, a good environment, love and an ideal school.

But as our financial situation didn’t support us to send Raiyan to any special school as these schools are very expensive in our country.

Alhamdulillah, one day I came to know about Bashundhara Special Children Foundation. After that, I found a ray of hope to be able to enroll Raiyan there according to their rules. In this amazing environment of the school, my Raiyan is receiving sincere love and care from all the teachers and other staff.

I am also observing the beautiful results of everyone's efforts. For example, before going to the school—

  • Raiyan used to cry a lot.
  • Didn't want to sleep at night.
  • Didn't want to eat many kinds of food.
  • It was difficult to attend various social events with him.
  • He did not want to sit still.
  • Used to scream for no reason.
  • Used to display very stubborn behavior.

Also, there were many other problems or obstacles that he used to face. Now by the grace of Allah, after attending school regularly for three years, we are seeing significant improvement. For example:

  • Raiyan's stubbornness has subsided a lot.
  • He now sits calmly for a long time in one place.
  • Has learned to behave properly in various social events now.
  • Doesn’t cry for no reason anymore.
  • Has learned to eat different types of food.
  • Can perform many tasks according to orders and instructions.
  • Even without having parents around, he can get along well with his teachers or strangers.
  • Has learned to do daily life activities by himself.

All this has been possible by the will of Allah and the hard work of the Bashundhara Special Children Foundation. My Raiyan has come this far because of the patience, effort and love of the teachers and other staff at this school. So, I express my special respect and gratitude to the Chairman Ma’am of Bashundhara Special Children Foundation and Bashundhara Group for helping my child to thrive and to lead a beautiful and normal life.

I am the mother of a child with autism who has special needs. When my son was 2 years old, I came to know that my son has autism. He could not speak then and did not respond when called. He used to just watch TV all the time. People in my house used to say, “Your son has hearing problems, consult an ear specialist.” After examining the ear, the doctor said, “There is no problem in his ear. Better you take him to the PG hospital.” After going there, what I got to know from the doctor, I was not ready to hear that at all. Never thought I would hear that my child has autism. I have never heard of this problem before or seen anyone like it. The doctor first told me to send him to a normal school, the company of other kids might make his condition better. I admitted him to a regular school but when other parents heard about his problem, they didn’t allow their children to sit next to him. Besides, the teachers used to put him at the very back of the class and could not make him do anything. I was suffering a lot. I didn't even know about special schools back then. Moreover, when his father died suddenly, I became very lonely and helpless. My son was 7 years old at that time. I took him to a special school for 6 months, but there was no improvement. Our neighbor's kids did not want to be friends with him and did not let him play with them. I kept asking Allah for help all the time and said only one thing to Him, "Will I ever hear Abir calling me ‘mother’? Won’t he ever be able to tell me even if he’s hurt and suffering a lot? Will he never be able to share his feelings with me?" In 2017, I admitted him to Bashundhara Special Children Foundation School run by the Bashundhara Group. In the beginning, he was very restless. Didn't want to sit in one place, didn't listen, couldn't say a word. Slowly he learned to speak. Now he talks a lot. Currently, he is studying in 4th standard and his intelligence has also improved MashaAllah. For all this, I would like to thank the founder of Bashundhara Special Children Foundation Yasha Sobhan Madam and the head teacher, psychologist, Abir's class teacher along with all the other teachers, therapists and staff. Without their love and effort, I would never be able to see my child being this normal today.